Just came across this article. After the last article I read I’ve been hesitant to read articles, but this one grabbed me at the headline: Fulvestrant Survival Advantage in Advanced Breast Cancer.
It caught my attention because Fulvestrant is one of the drugs I’m on right now. It’s been working really well in combination with the trial drug MLN0128. My scans have been NED since starting the trial. I haven’t posted or talked about it much, because I don’t want to jinx it and because I’ve been busy living life and not dwelling in a cancer funk.
It’s kind of a long technical article. The entire thing is here in case you’re up at night and need sometihng to put you to sleep, but I’ll just post and respond to the parts I like best below. Read more
I’ve read it multiple times. I agree with everything Laurie says. It’s one of those articles that I didn’t mean to read but I did. I’m not sure yet if I’m glad I read it or not. Its one of those articles that brings my cancer back to front and center. Whereas before I read it I was just gong along living my life, thinking I was just a normal cancer free person.
That’s the name of my new drug. MLN0128. Very creative right? Someone needs to teach these scientists a little something about marketing. Try something like “Tumor Killer” or “Best Breast Cancer Drug Ever” or “Problem Solver”. I like to think of it as my code name, my secret agent number, or my mission code. My password among the breast cancer community. But this is cool, you can look it up on the ClinicalTrials.gov website.
I found out rather quickly that I got in the clinical trial I wanted. I start on the 14th of July. There are a bunch of details to deal with, forms to sign, tests to be done (minor noninvasive tests), basically I will resign myself over to science and become a lab rat, a small price to pay for hopefully some success. This is the second clinical trail I will have been on since diagnosis. I’ll get all the details on the 14th about what I have to do and what is going to be done to me, but this is what I know:
In May I spent a wonderful weekend with some friends from college who came out to Colorado for a visit. We had a little reunion on Friday night and spent the rest of the weekend in the mountains. It was very therapeutic to spend time with my dear friends, and then I got a facial…. Read more
I firmly believe I’m feeling the side effect of fatigue as a result of the drugs I’m on. I am really wiped out at the end of the day. Could be the “getting up at 5:30 to workout” thing, or the “full time family and full time job” thing, or the “staying up until 10:30 to get things done” thing….but I like to blame it on the drugs. I blame everything on the drugs: pimples, forgetfulness, weight gain, bad outfits, Starbucks addiction, global warming, etc. Read more
So you might recall I had a scan in October, the results of which lead to a lumpectomy on Halloween. Got rid of the tumor, went on a new drug – marked on my calendar as “Shot in the Ass” every month – and was told to come back in January for another scan.
I remember it was an afternoon appointment on a Monday in October / ”Buy a Pink Hammer Month”. I hurried to get there from work in heavy rush hour traffic. Josh was meeting me there. I don’t remember the exact point of the visit, but I do remember sitting in the examination room waiting to see the nurse and casually scrolling through Facebook on my phone. Then I saw the post…
A very sweet video that brought tears to my eyes and remineded me how tough it was to go through chemo. I forget the uncomfortableness of the medicine and the days spent in bed recovering from each dose – but what I remember is summoning the courage to go on with daily life. This video reminds me of that courage and how importnat friends and family are and the support they provide (continue to provide:)
Anything for love … from Albert Bredenhann on Vimeo.
I don’t want to spoil it, but when it came time for me to go through this part of chemo it was really hard. And Josh knew that, and this is what he did for me.